REMEDS

REMEDS is a registry platform for families from all over the world whose family members are affected by a disease called DupMECP2. The platform aims to provide a welcoming, trustworthy place to help research in the long term, as opposed to a traditional, cold registry.

The disease that has created a strong community. Together with international associations, initiatives are being taken to provide information on the diagnosis of DupMECP2.

The REMEDS platform brings together families, doctors, researchers and experts. With a clear interface and a lively dashboard and newsfeed, the platform remains up-to-date and relevant.